Misdiagnosed, a common story.

I had gestational diabetes with my third child (aged 33) but could not control it with twice daily insulin despite being tiny and sticking to the suggested diet 100%. He came out absolutely perfect and 6lb.

 

At my 6 month check up my hba1c was 9.5 but my doctor told me to lose weight. I lost 10kg.

 

I took my own sugar levels when my son was 18 months and I didn't feel great and they were 13.5. The doctor told me my glucose monitor must be wrong. 

 

I had severe stomach pains and sat in ED one day for 7 hours. They didn't check my sugars. 

 

2 months later there was a day where I lost half of my vision, could not drink enough water and was delirious. I tested myself on the same glucose monitor and I was 23. The ambos came and theirs read the same. 

 

The ED doctor diagnosed me straight away as type 1 and said I was the fittest person in emergency. The hospital endos said I was too old and fat to be type 1. I weighed 60kg 

 

There was a 27 year old man in the cubicle next to me who had just been diagnosed as Type 1 as well. His kidneys were failing and he was off to ICU.

 

Antibody tests proved T1 LADA...a much slower onset compared to childhood T1. So much misdiagnosis and miseducation. I have a beautiful team looking after me now and an happy to share my story to highlight that T1 is not always the childhood disease we're told it is ❤

 

- Sarah

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"No knowledge about diabetes at all before him being diagnosed" - Says Natasha and probably 90% of us T1 Parents.

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Tyson's Story was featured on the ABC News